Thursday, October 29, 2009

The unveiling.

And here we go: Pelosi Unveils Health Care Bill

“House Democratic leaders, citing cost analysis by the Congressional Budget Office, said the bill would reduce future federal deficits by about $30 billion over the next 10 years, meeting President Obama’s demand that the health legislation not add ‘one dime’ to the nation’s indebtedness.”

Hallelujah. And that’s all I’m saying until it passes to avoid jinxing it.

Wednesday, October 28, 2009

Celebrities get swined.

Say it ain’t so LeBron. In honor of my stricken colleagues and the hottest health topic behind the health care debate, I present ABC’s “Celebrities with Swine Flu” gallery: abcnews.com/swineflunews

They saved the best for last, for sure.

(Image by Keith Allison.)

Tuesday, October 27, 2009

The skin cancer link.

Saw this pop-up in my Google alerts and was not surprised at all to read it (warning, if medical photos disgust you in any way, do not click this link): medpagetoday.com

Yikes. Guess I can’t blame my 7-hour Mohs surgery on surfing and lifeguarding anymore. More here: health.msn.com and here: attorneyatlaw.com

Friday, October 23, 2009

Ha ha healthcare.

Love this. U.S. News has compiled that best editorial cartoons on the healthcare debate: usnews.com/galleries

Some are so good, they’re tragic.

Tuesday, October 20, 2009

Surviving cancer, but not healthcare.

Check out Krisja Hendricks’ story on Rock The Vote.com.* At 22, while on her father’s medical insurance, Krisja survived a thyroid cancer diagnosis. A year later, unable to obtain coverage due to her pre-existing condition, she was diagnosed with Crohn’s disease.

“During my second flare up of Crohn’s Disease I had to move back home with my father because I could no longer work or take care of myself. This was because I had waited too long to start the medication needed to control the flare up. There was no generic brand of the steroid I was prescribed and one bottle that lasted a little over 2 weeks cost around $250 for self pay individuals like myself. All of this could have been prevented if I had had prescriptions covered and the proper care needed for such a degenerative disease.”

If Krisja’s struggles to obtain real medical insurance coverage don’t convince you of the changes needed in American healthcare, I’m not sure what will.

More here: rockthevote.com/krisjas-story
And here: reuters.com

*Rock the Vote is an organization whose mission is to engage and build the political power of young people, and I love their healthcare motto: “You will care when you need it and can’t get it.” (well put)

Saturday, October 17, 2009

Great news in the fight against Wegener’s.

With Wegener’s one of my greatest fears has always been having to someday be put on cyclophosphamide knowing that I would likely become infertile in addition to developing cancer later on. But this week, at the annual meeting of the American College of Rheumatology, the news was revealed that Rituxan can treat sever ANCA-associated vasculitis—such as Wegener’s—just as effectively as cytoxan (aka cyclophosphamide).

Previously used for the treatment of non-Hodgkin’s lymphoma and rheumatoid arthritis, Rituxan was found to be effective in a study across nine medical centers including 197 patients with Wegener’s granulomatosis and microscopic polyangitis. More here: eurekalert.com

Thursday, October 15, 2009

A new set of toes.

One of my brothers, who shall remain nameless, is cursed with my grandfather’s toenail fungus issues. In fact, his most common reply to his daughter’s question of “Daddy, guess what I got you?” is “A new set of toes?” It always makes me laugh.

As a swimmer from a young age on, I was the victim of many an athlete’s foot attack which, upon reflection and next to my brother’s story, makes me wonder if some of us aren’t predisposed to getting nasty foot fungal attacks. That and the fact that we all keep running long road-races and beating our feet up—see The New York Times for a short piece on the nameless brother’s running style.

Regardless, it’s interesting to know that the same ingredient used to naturally kill germs in Cleanwell’s line of products—thyme—is also being used to treat onychomycosis. This may not be a big deal to those of you with perfect nails, but the leading treatment for nail fungus Lamisil has a know side effect on your liver. Personally? I’d rather just rub some thyme on my toes.

Want to know more? Read on: Thyme for your toenails

Tuesday, October 13, 2009

Dale Carnegie was right...

...when he said, “Most of the important things in the world have been accomplished by people who have kept on trying when there seemed to be no hope at all.”

With that in mind, I point you to one of Dr. Geoff’s posts from July, just to remind us all why this fight is so important to continue: Why do we need healthcare reform? He does a great job of rationally explaining healthcare reform in a laconic style.

Also, check out his more recent summary of why those who currently have health insurance should speak louder for reform than those without (even if it appears that the public option won’t make it into the current bill): Healthcare reform for the uninsured

Monday, October 12, 2009

Conmemorar.

I am of the belief that is very healthy and good to remember those who have passed, particularly long before their time. September and October bring to mind the loss of a few friends whose presence would absolutely make this world a better place.

One in particular—Joe Milligan—is someone I think of often (partly because Geoff reminds me so much of you, Joe). And inevitably some crazy swell always stirs up around the time of Joe’s passing. Here’s to remembering those who continue to inspire us, no matter the tragedy.

Thursday, October 08, 2009

“Let Congress Go Without Insurance”

Love it. Nothing more to say except read it: nytimes.com/op-ed

(and thanks for sending me the link Bill!)

Wednesday, October 07, 2009

And that’s a wrap.

It has been a busy couple of days at Health 2.0, but we’ve come to an end and I have a lot of summarizing to do! Look for reflections and inspirations taken directly from the conference over the next few weeks.

Let’s begin the reflecting and inspiring with Dave deBronkhart or as he is better known to the world—e-Patient Dave. Dave beat stage IV (!) kidney cancer in 2007 and since has told his story near and far, testified in the capitol on behalf of patients’ data rights, and had quite an interesting experience transferring his health records into Google Health (it was entirely the fault of the hospital, not Google).

Dave replied to a comment today on his blog and said something so profoundly simple and perfect about healthcare, I just had to share.

Someone asked, referring to the healthcare debate and access to care, “How do we move this forward?”

Dave replied, “I think a first step is to have a clear vision of current reality. If we become aware of the human impact and suffering that comes from our situation, we'll be better empowered to use our creative energies.”

The more we share our stories of healthcare (good and bad), the more the human impact will overcome the naysayers who want everything to remain the same. And if you need some evidence of just how truthful this all is, check out Dave’s post from today: To Have, And Have Not, part 2

Watch Health 2.0 live!

Hello from sunny San Francisco! It’s already been a great morning full of insight, discussion, and debate here at Health 2.0. Feel like you’re missing out? Watch it all live here: justin.tv/health2con

Don’t miss Arna Ionescu’s announcement of the winner of the Human Centered Design Contest hosted by IDEO around noon.

(above,
Roy Schoenberg, CEO, American Well—if only all CEO’s could look errrr speak this well.)

Tuesday, October 06, 2009

Top ten best things at Health 2.0 (so far)

10. Finding out about Frontline SMS: free, open source software that turns a laptop and a mobile phone into a central communications hub.
9. And subsequently a place to donate your old mobile phone for an incredible cause: Hope Phones
8. Getting water canteens at check-in rather than plastic water bottles. Brilliant.
7. Hearing this Thomas Jefferson quote in reference to educating the masses about healthcare: “Educate and inform the whole mass of the people. Enable them to see that it is their interest...”
6. The heated discussion during the patient is in hosted by Amy Tenderich from DiabetesMine.
5. The IDEO human-centered design contest presentations (yea, I’m definitely biased)
4. Al Waxman telling us that our doctor does not love us
3. Hearing from Aneesh Chopra
2. Ron Dixon talking about “care that makes sense.”
1. Maggie Mahar referencing hospital stays, “Go to the hospital with someone you love, preferably an attorney.”

Also, all of the demos were great, don’t want to forget them, but a “top eleven” seemed weird.

Welcome to Health 2.0!

Good morning! It’s only 9:30am and we’re already off to a great start. After a brief intro to the next few days from Matthew Holt and Indu Subaiya, we heard from Aneesh Chopra, Chief Technology Officer (CTO) for the U.S. government.

The gist of Chopra’s talk? A call to action for the health community. He wants to hear from health practitioners, patients, entrepreneurs, etc.—the frontline. “What data sets would you like to get your hands on? Help me to move the ball forward.”

More about his health IT standards committee to come. The wi-fi here is (ironically) very spotty.

Monday, October 05, 2009

Health 2.0: a (continued) preview of what’s to come this week

Tomorrow we’ll hear from Michael Millenson, author of Demanding Medical Excellence, as he moderates a panel on how Health 2.0 can (I’m an optimist) make healthcare more affordable. Michael will host the discussion between Al Waxman, Luke Mitchell, and Maggie Mahar.

I’m particularly interested to hear Luke’s thoughts after reading his incredibly insightful article back in February: Sick in the head: Why America won’t get the health-care system it needs

More tomorrow! See you all in the morning...

Sunday, October 04, 2009

Health 2.0: a preview of what’s to come this week

I am honored to be blogging on behalf of Wellsphere’s HealthBlogger Network at Health 2.0 this year in my beautiful city of San Francisco. So rest up people! We’ve got a lot to cover in just two jam-packed days.

The theme for this year’s conference is “user-generated healthcare” which means a sneak peek at the latest next generation tools in doctor-patient interaction, a human-centered design challenge judged by some clever IDEOers, and a keynote address from Obama’s own Aneesh Chopra...and that’s just the first day!

Check out the agenda here and stay tuned for more on what to expect at this year’s Health 2.0 conference.

Pssst! Let me know if there is any part of the conference your are particularly interested in learning more about.

Friday, October 02, 2009

Who can’t use an extra advocate?

I just learned about the Crohn’sAdvocate Program today and it’s no coincidence that it is sponsored by the makers of my current drug (which, in a way, makes me like it more). UCB actually hired several brand advocates, all people with Crohn’s disease, to speak on behalf of their illness in conjunction with the launch of Cimzia injectable. Brilliant, right? I thought so too.

“The Crohn’sAdvocate Program was designed to connect, educate and empower those living with Crohn's disease. With a patient-focused attitude, the program highlights the stories and experiences of people battling Crohn’s.”

If you haven’t already, check out their site and register for a free Crohn’sAdvocate mag, plus find local Crohn’s related events in your area.

Thursday, October 01, 2009

An ostentatious ostomy.

Wow. Talk about a provocation. Jessica Grossman is getting rid of the social stigma of living life with (an) ostomy, an unfortunate reality for so many people with Crohn’s and colitis. Check out her site—Uncover Ostomy—an awareness campaign that is shaping a positive conversation about the ostomy.

More from Jessica here too: youtube.com
And don’t miss her blog either: uncoverostomy.com/blog